And still melting...
The nurse practioner, Cindy, came in today and told me that Dante's alpha feta-protein count was 600. I said, " they told us 1800 on Wed" Cindy: " Yes, but that was from last week's lab work, this one is from this weeks." Yea! Come on big 2-0!
I was about to write and tell you that Dante had been doing great this visit, but he just had "yuckies in his mouth" pretty bad. I knew it was going to happen because he asked for "bugs" (graham crackers shaped like bugs) and then his face went green when I opened them up. Of course, 2 minutes later he was asking to play a game on the computer, so at least he doesn't dwell on it! He seems to get sick right before one of his nausea meds is due, and sure enough - I just checked and he was late getting it today. I think I'll start writing down the times next time to avoid another yuckie. Other than that, he looks much better today, as he had been looking a little puffy from the anethesia on Tuesday.
Dante and I went to music class today. It was pretty funny. It was the music therapist, Julie, her intern, Catherine, and a volunteer named Rosalie, and me and Dante. So, he had 4 women singing songs for him and I could just see that he was thinking what great control he had over us to make us do silly movements and songs for him! I am glad they have activities like that to break up the visit.
Hopefully, we will head home on Monday again. Sleeping on the recliner and sharing a room with a family that doesn't speak English makes for a long weekend.
I was about to write and tell you that Dante had been doing great this visit, but he just had "yuckies in his mouth" pretty bad. I knew it was going to happen because he asked for "bugs" (graham crackers shaped like bugs) and then his face went green when I opened them up. Of course, 2 minutes later he was asking to play a game on the computer, so at least he doesn't dwell on it! He seems to get sick right before one of his nausea meds is due, and sure enough - I just checked and he was late getting it today. I think I'll start writing down the times next time to avoid another yuckie. Other than that, he looks much better today, as he had been looking a little puffy from the anethesia on Tuesday.
Dante and I went to music class today. It was pretty funny. It was the music therapist, Julie, her intern, Catherine, and a volunteer named Rosalie, and me and Dante. So, he had 4 women singing songs for him and I could just see that he was thinking what great control he had over us to make us do silly movements and songs for him! I am glad they have activities like that to break up the visit.
Hopefully, we will head home on Monday again. Sleeping on the recliner and sharing a room with a family that doesn't speak English makes for a long weekend.
2 Comments:
I was wondering what your room situation was and sorry, you have to share a room again. I hope he gets down to 20 soon and that you're back home Monday for sure!
Kip
By Kip, at 11:06 AM
Jennifer, I figured how to do this again! I was so sorry to hear about Chris' Mom. You really needed that! But was delighted to see the numbers still going down!!Hugs and kisses for Dante!!!! Lyndall
By Anonymous, at 1:30 PM
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