Fries are done

Sunday, September 24, 2006

Notes, thoughts, etc's, and miscellaneous items

Comment replys:
Either it doesn't exist, or we are unable to figure it out (go figure - a tech coordinator and production geek), but at this time we are unable to respond directly to comments without posting a whole new comment. Not that big of a deal, but sometimes we'd like to respond in a more private manner....

What's up Blogger?! All that Google backing and you can't include private/instant messaging? Maybe we should move this thing over to Myspace......Of course, then we'd be able to instant message not just all of you good people, but all the porn star "friend" requests too! Lot's of support from that camp, I tell ya.

So, in regards to all that, if anyone knows of a solution or workaround, please let me know. Otherwise, we're working on a way to reply to comments, but it's still "in development", so in the meantime:
Yes. Thank you so much for your encouraging words. We're working on that. He loves them. He really liked the fruit. You have no idea. It smelled worse than a drunken sailor on Sunday morning. Fantastic! He loved it! I'm so sorry, I completely forgot about that. No, we missed that episode, but I heard all about from the nurses the next day. It tasted so good. We'll know more soon. Thank You. Thank You. Thank you. Holy Crap! Thank You!

Tech Coordinators: If ever there were a group more dedicated and less appreciated, I would be amazed. In the midst of all the crap you people have to put up with you found time to help out, yet again, someone else - this time it had nothing to do with Blue Screens of Death, but you made it work just the same. Thanks so much for your support, generosity, and kindness.

Toys, Books, Knic Knacs, Tchotchkies, Bric-a-brac....:

Many folks have brought in some very thoughtful items that Dante has enjoyed quite a bit (and I can't tell you thankful we are for that.) These items have done well to keep him entertained during our st
ays. He will ask to play with them on his own, and will often remember who brought it in, which is really cool (if only we could get him to remember to say "please".)

An important part of his treatment is remaining healthy during and after chemo. As many of you know, the chemo depletes the white blood cells in his system, some days to the point where he effectively has none, and this, in turn, affects his ability to fight off opportunistic infections. Here in the hospital, the staff is very diligent about washing hands and using antiseptic hand cleaner. Before anyone enters any patient room they wash their hands, and usually immediately after exiting too. Often I have to remind myself to do this even though I'm a clean freak (thanks Mom.)

Part of this regimen is cleaning off items that Dante will come in contact with, whether it's from home or from someplace else. So in order to remain healthy and on track we would ask all of you who visit and plan on bringing toys or books, to please take a moment before you put the items in a bag, to wipe them down with some antiseptic wipes or hand cleaner. If you can imagine how many little hands may have come in contact with that Elmo book at Borders before you got to it, you can see what I mean.
If you don't have wipes or cleaner, that's okay too. We have an ample supply here and we can take care of it on arrival. Just let us know.
Again, we really appreciate all the thoughtful gifts. They have been a big help.

"Uummm, what exactly, am I supposed to do with this?...."

"Do you have any idea how ridiculous we look?"


  • I found this site thanks to your mom. You don't know how many of us are going through this with you. I have a good friend who's baby had to go through a complete stem cell change and was hospitalized almost a year with parents unable to touch him through much of the time. All between 6 mos. and a year and a half. They couldn't go out unless he wore a mask. At 2yrs. he is great and in preschool loving everyone. I'm sure Dante's story will play out as well. I remember Dante as such a happy boy and think of him every time I look at the Aligator at the beach (the one with a fish in his mouth) Remember the beach is there if and when you need it. By the way, I can't believe someone already has the user name Lyndall!!! We send all our energy and prayers. Lyndall and Bolling

    By Blogger Lyndall Stanley, at 11:10 AM  

  • Hi Jennifer, Chris, Dante, & Carina,

    Cindy-Zane's mom here...
    My Mom (Carol)sent this to me and found it so very moving. I know many parents are following your story and wanted to share this with you and them. You all remain in our prayers.

    To My Child (don't delete ~ its being tracked)
    Just for this morning, I am going to smile when I see your face and laugh when I feel like crying.
    Just for this morning, I will let you choose what you want to wear, and smile and say how perfect it is.
    Just for this morning, I am going to step over the laundry, and pick you up and take you to the park to play.
    Just for this morning, I will leave the dishes in the sink, and let you teach me how to put that puzzle of yours together.
    Just for this afternoon, I will unplug the telephone and keep the computer off, and sit with you in the backyard and blow bubbles..
    Just for this afternoon, I will not yell once, not even a tiny grumble when you scream and whine for the ice cream truck, and I will buy you one if he comes by.
    Just for this afternoon, I won't worry about what you are going to be when you grow up, or second guess every decision I have made where you are concerned.
    Just for this afternoon, I will let you help me bake cookies, and I won't stand over you trying to fix them.
    Just for this afternoon, I will take us to McDonald's and buy us both a Happy Meal so you can have both toys.. !
    Just for this evening, I will hold you in my arms and tell you a story about how you were born and how much I love you.
    Just for this evening, I will let you splash in the tub and not get angry.
    Just for this evening, I will let you stay up late while we sit on the porch and count all the stars.
    Just for this evening, I will snuggle beside you for hours, and miss my favorite TV shows.
    Just for this evening when I run my finger through your hair as you pray, I will simply be grateful that God has given me the greatest gift ever given.
    I will think about the mothers and fathers who are searching for their missing children, the mothers and fathers who are visiting their children's graves instead of their bedrooms, and mothers and fathers who are in hospital rooms watching their children suffer senselessly, and screaming inside that they can't handle it anymore.
    And when I kiss you good night I will hold you a little tighter, a little longer. It is then, that I will thank God for you, and ask him for nothing, except one more day...............

    By Anonymous Anonymous, at 2:45 PM  

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