Fries are done

Wednesday, September 13, 2006

The Honeymoon is over

Went to the doctor's today to check his blood counts. We had an 8:45am appointment and we still had to wait almost an hour, AND I had to go fill out the authorization forms again. Apparently these forms (4 pages) need to be filled out and signed everytime he goes in for any reason. So if Dante has to get his counts checked 2 - 3 times per week for the next 6 months, well, you can see where I'm going with this.
What a freakin' scam. Somebody to fill out forms. Somebody to call in the authorization. Somebody to authorize the authorization. Somebody to approve the authorization. I'm wondering where the actual Health part of the Health Management organization comes in. And the organization part for that matter....

So Dante was looked a bit sleepy this morning, at the doctor's office, but generally okay. He knew what was coming though, and was none to happy when it was time to take his shirt off. But then, he's 2, so I guess he's just doing his job.

The nurse asked if we had any questions for the doctor, or if we wanted to actually see one, or a PA. Call me unconventional, but when I go to the doctor's office for a check -up on my cancer, yeah, I generally like to actually see a doctor..... Turns out the point was moot because when the nurse came back in with the counts, Dr. Barbosa was right behind her.

Dante's counts have bottomed out, or reached the "nadir", as they say, which means he is very susceptible to infection now. His ANC (absolute nutriphil count - his ability to fight infection), is at 0. It should be 1000 or above to be "healthy"; On the 1st day of chemo he was at 6300. His platelet count is also very low, along with White Blood Cell count and just about all the other categories. So, needless to say, we will be staying inside for the next couple of days.

Hopefully his counts will rebound in the next 4-7 days and he will be healthy enough to go in for round 2 on the 20th.

Ironically, Jen and I we're just talking about this last night. How we have been pretty lucky so far; that he's been responding really well to the treatment, and his counts are staying up there, but that we should keep in the back of our minds that he will get sick at some point and that we should be prepared for that. Hmmmm.

I suppose he IS responding well, and that his prognosis is still very good. It's just hard each time you have to experience something new for the first time. It tears away all the positive outlook you've built up, in an instant.

Of course, this news is still only 3 hours old, so we have yet to digest it fully. Hopefully we shall be in renewed spirits after naptime.

- chris

6 Comments:

  • Hang in there! It might get a little bumpy but you have a lot of people sending out their love and prayers to you all! Randy's aunt just went through treatment for Ovarian Cancer and she is doing GREAT! We'll be thinking of you!!!

    By Anonymous Todd Flatt, at 6:49 PM  

  • Chris & Jen - I am a scrapbooker that enjoys Kip's blog, which led me to the story of your little boy. I would like to pass along my best thoughts and wishes to your family and hope your beautiful little boy will beat this thing.
    Sincerely, Jill

    By Anonymous Jill, at 7:57 PM  

  • Like Jill I am a friend of Kips. Know that Dante and you both are in my prayers. Yes, and keep demanding to see the doctor, like you dont have enough to deal with.
    Ruth

    By Blogger Ruth, at 11:09 PM  

  • Keeping you all in my thoughts and prayers.

    By Blogger Jules, at 7:28 AM  

  • Dear Chris & Jen
    Close your eyes and feel the LOVE & PRAYERScoming your way for Dante and both of you!!!!!
    By the way i hear that Carvel might be closing it's stores.
    Seems for some crazy reason all of their icecream keeps melting away.Geeee you think!!!!!!
    All our love

    Dad Lynda &John

    By Anonymous Anonymous, at 8:21 AM  

  • Sending LOVE and LIGHT for this hospital stay...You know how WARM light is, don't you? Ice cream can't hang for long in the Light.

    Jenny

    By Anonymous Jenny, at 11:37 PM  

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