Fries are done

Friday, September 15, 2006

Positive notes

We are allowed to escape the room today - you have to stay in the room for 24 hours after having a fever. So, we have already been to music class, the playroom and to visit the fishies.

Dante's ANC is up to 20 and his other levels are quite low, so he might need a blood transfusion tomorrow. We have to stay until Sunday, but if his counts don't improve, we will be here longer. I hope not too much longer, as we are supposed to start round 2 on Wednesday.

His hair started to come out today. Not obviously to anyone, but lots of strands everywhere on his shirts and pillows. Sara, his child life therapist, had him put a scarf on a puppet, Reggie, who had lost his hair. He also got to put tape on Reggie's port and put medicine in the line. I swear, whatever the child life therapists make - it is not enough. Sara has made our stay here so much smoother, not only in talking to us and Dante but being our advocate with the doctors and nurses as well. Dante is so much more comfortable with the medical equipment and hospital experience after talking and playing with Sara. Thank you Sara!

I thought I would add today some positive things that are happening:
  • Dante is super happy. We have a double room, but only one bed, so we made the other half of the room into a dance floor last night. We had a blast!
  • Carina has learned to smile at the hospital. She was just starting last visit, but now is actually giggling and watching us walk around the room and giving us a big gummy smile.
  • I get to put Dante in silly outfits - I bought some babylegs - which are perfect for a cold hospital room when they want to check his diaper or surgery scars all the time. Chris isn't too happy about the feminine aspect of the babylegs, but Dante loves them! I think we're going to buy the ones with flames to make daddy happier.
  • Being in the hospital completely insulates you from all the bad news going on in the world, as we don't have time to read the paper or watch the news. Or be home to get bills in the mail!
  • I get to take cute photos of the kids sleeping - how rare that is at the same time!
  • Dante has his first crush - his nurse for the past 2 days, Adissa. Everything is Adissa this and Adissa that. We have really have had the greatest nurses. Everyone is helpful and friendly and puts up with us asking a million questions. But, then again Dante charms them all with his smile and green crocs.

Thanks to Molly for the salad - can't wait to try it! Thanks to Aunt Laurie for the Pumpkin Spice Latte and yet another Elmo button book.
OK - stay tuned for tomorrow's ANC count. I might actually try to fill in backstory tonight if I find the time for those just tuning in...

7 Comments:

  • Dante & Carina look sooooo cute & resting comfortably. I hope you & Christopher will get some much needed sleep too. Sending some more prayers for a brighter tomorrow. Hugs & kisses from all of us!

    By Anonymous Dori, at 4:48 PM  

  • The pictures are adorable! I'm so glad to see Dante so happy! We think about you constantly. Just call if you need ANYTHING!

    By Blogger Beth Finch, at 6:50 PM  

  • The pics are adorable! Hope to hear some good news about his scores in the days to come! Ya'll are in our prayers!

    Cynthia Gamrot

    By Blogger Cynthia Gamrot, at 11:00 PM  

  • omg this is a parents worst nightmare! I pray that you stay strong during you're journey with dante

    By Blogger Bluepaintred, at 2:59 AM  

  • Our thoughts and prayers are with all of you at this time!! Your mom keeps us posted, Chris. We had the pleasure of checking in on your grandmother last week; of course she needs nothing; what a grand lady.

    Your children are absolutely adorable; because of them you will find the strength to keep your spirits up.

    By Anonymous Carolyn and Dennis Cloutier, at 2:45 PM  

  • This comment has been removed by a blog administrator.

    By Blogger CBC Barefoot Books, at 9:28 PM  

  • The pictures are all so adorable and look at Carina's wonderful smile! I hope his blood counts are up and he's on the way to the next chemo to get this thing over with and out of his poor body. Call me if you need anything Jen, really.

    Kip

    By Blogger Kip, at 12:03 PM  

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