Are We Coming or Going?
What a crazy day for us today as a start to the craziness of this week. We had Carina's 4 month well check up this morning. She is the same length and weight that Dante was at 2 months! She smiled the whole time and did great with her shots. She got 4 shots and is now not feeling too happy.
Next up, Dante had a doctor's appointment and we found out his ANC is zero and everything is bottoming out. His platelet count was 8. So, Chris and Dante had to go back to the office for a transfusion this afternoon. I left work in a rush to try and help. He might need a transfusion of blood on Thursday, so we have an early appointment to check. If his blood counts are too low, they won't do his scans on Friday.
Dante has been on a very thin thread emotionally lately. I think that is the only way we can tell he is feeling bad. He cries at the slightest little thing and then can't seem to stop or know even why he is crying. He is pretty happy most of the time, just quick to get upset. He isn't eating very much, although he is drinking and trying to eat throughout the day.
After hours on hold and I don't know how many phone calls later, our PET scan for tomorrow is not going through. We could write an entire post on that, but will save that for later! Anyways, we will be trying again for the PET scan at the end of the month. We are having a bone scan and CT scan on Friday. I don't think they will be checking his Alpha Feta Protein again until next week. Here is what we are looking for to get the all clear: AFP of less than 20 and nothing on all of the scans. If those are clear, we wait three months and then rescan to make sure the cancer has not returned.
Thankfully, a mom from the Northside MOPS group brought us dinner tonight, so we didn't have to worry about that and could focus on keeping the kids happy.
Now we just need to keep Dante super clean and healthy. Last time he hit this low, he ended up getting a fever which means a hospital stay. We are limiting his exposure and doing a ton of laundry these days, as we have to change all our clothes whenever we come home. Hopefully, his counts start to come back up by the weekend.
So, as Chris said, I'm sure by Saturday, we will all be in need of some quiet time after getting through this week.
Next up, Dante had a doctor's appointment and we found out his ANC is zero and everything is bottoming out. His platelet count was 8. So, Chris and Dante had to go back to the office for a transfusion this afternoon. I left work in a rush to try and help. He might need a transfusion of blood on Thursday, so we have an early appointment to check. If his blood counts are too low, they won't do his scans on Friday.
Dante has been on a very thin thread emotionally lately. I think that is the only way we can tell he is feeling bad. He cries at the slightest little thing and then can't seem to stop or know even why he is crying. He is pretty happy most of the time, just quick to get upset. He isn't eating very much, although he is drinking and trying to eat throughout the day.
After hours on hold and I don't know how many phone calls later, our PET scan for tomorrow is not going through. We could write an entire post on that, but will save that for later! Anyways, we will be trying again for the PET scan at the end of the month. We are having a bone scan and CT scan on Friday. I don't think they will be checking his Alpha Feta Protein again until next week. Here is what we are looking for to get the all clear: AFP of less than 20 and nothing on all of the scans. If those are clear, we wait three months and then rescan to make sure the cancer has not returned.
Thankfully, a mom from the Northside MOPS group brought us dinner tonight, so we didn't have to worry about that and could focus on keeping the kids happy.
Now we just need to keep Dante super clean and healthy. Last time he hit this low, he ended up getting a fever which means a hospital stay. We are limiting his exposure and doing a ton of laundry these days, as we have to change all our clothes whenever we come home. Hopefully, his counts start to come back up by the weekend.
So, as Chris said, I'm sure by Saturday, we will all be in need of some quiet time after getting through this week.
posted by Jen at
9:24 PM
2 Comments:
Jen & Chris,
Sending thoughts of POOLS of liquid streaming OUT of Dante's life and down the sewer system...
May the numbers and scans from this week reflect that the cancer has left his body and that he can begin to recover and heal...
Love and light, Jenny
By
Anonymous, at 7:13 PM
All of our love and prayers today for Dante,and a Happy 4 mounths for Carina.
Talk to u soon
Love
Grandpa,Lynda andJohn
By
Anonymous, at 12:29 PM
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