Living in Limbo

I think that finding out any news is better than not knowing anything at all. We are currently in limbo as far as Dante is concerned. He is right now getting a bone scan (I will never get used to watching them put him out). Next Tuesday, they will be doing a CT scan and a GFR test. The GFR tests his kidney function, as the chemo is pretty rough on them. The following week we have a PET scan and get the results of his Alpha Fetoprotein count. And then yet the following week, we have the hearing test, as one of the chemo drugs has the common side effect of hearing loss. We had tried to schedule them all closer together, but no luck. In the meantime, we have had 3 transfusions this week, and a daughter who is not very happy after receiving her 4 month shots. So, here we sit, wondering what's next, wondering how our son is doing, wondering how to plan for the holidays, just wondering.

In the St. Pete Times today, there is an article about a little boy, Avant Brown, who passed away this week that we met at All Children's and was there for most of our stays. Although we didn't know him very well, as you don't get to interact much with other patients, we did see him often and, are saddened by the loss. Our thoughts go out to his family.

Stay tuned for the results as we receive them over the next couple of weeks.