Long Day

We survived our first blood transfusion. They had us come back at 1:30 (so they could have lunch break). We started a little after 2 and it went for 3 hours and then you have to sit for 30 minutes in case of a reaction. Pretty straight forward actually, as he already had his port accessed(chemo talk for the port in his chest already having a needle in it, like a permanent IV).

How can you get so exhausted sitting in a room all day? Try it with a cranky 2 year old who can't leave a small space and didn't nap. You think to yourself -oh, we have 3 hours? I can get some reading in or some work done. HA! Nothing gets done when a 2 year old doesn't want it to! And the TV and VCR? No Noggin and only videos that are beyond Dante's age, except Barney. Which after 3 hours we resorted to or we were going to deal with some serious tantrums. Not that Dante even knows Barney, but it worked to mesmorize him and keep him still for about 20 minutes.

We had planned on a haircut today, but he was just a wreck after that. We will try again tomorrow. I have been upset watching Dante's hair fall out, as I think that it is obvious sign/reminder that he is sick. His hair is so thick, that a stranger probably wouldn't notice. But, if you lift up the front of his hair you can see it receding. Chris reminded me that to Dante, his hair falling out and looking thin/patchy could just as easily be silly if we make it, as he has no definition of "sick". So, we will try for a buzz cut tomorrow and find some silly hats for him to wear if he wants.

Since his ANC is high and he had the transfusion, we are back for round 2 and a week in the hospital on Wednesday. So, we have tomorrow off and then back to the routine. At least, we try to think positively that it remains routine.