Fries are done

Tuesday, September 19, 2006

Long Day

We survived our first blood transfusion. They had us come back at 1:30 (so they could have lunch break). We started a little after 2 and it went for 3 hours and then you have to sit for 30 minutes in case of a reaction. Pretty straight forward actually, as he already had his port accessed(chemo talk for the port in his chest already having a needle in it, like a permanent IV).

How can you get so exhausted sitting in a room all day? Try it with a cranky 2 year old who can't leave a small space and didn't nap. You think to yourself -oh, we have 3 hours? I can get some reading in or some work done. HA! Nothing gets done when a 2 year old doesn't want it to! And the TV and VCR? No Noggin and only videos that are beyond Dante's age, except Barney. Which after 3 hours we resorted to or we were going to deal with some serious tantrums. Not that Dante even knows Barney, but it worked to mesmorize him and keep him still for about 20 minutes.

We had planned on a haircut today, but he was just a wreck after that. We will try again tomorrow. I have been upset watching Dante's hair fall out, as I think that it is obvious sign/reminder that he is sick. His hair is so thick, that a stranger probably wouldn't notice. But, if you lift up the front of his hair you can see it receding. Chris reminded me that to Dante, his hair falling out and looking thin/patchy could just as easily be silly if we make it, as he has no definition of "sick". So, we will try for a buzz cut tomorrow and find some silly hats for him to wear if he wants.

Since his ANC is high and he had the transfusion, we are back for round 2 and a week in the hospital on Wednesday. So, we have tomorrow off and then back to the routine. At least, we try to think positively that it remains routine.

7 Comments:

  • Jennifer,
    I don't know if you remember me from Lakewood - Susan Pemble, now Hutchinson. Stephanie has been forwarding me your emails about your son, Dante. I wanted to let you know my prayers are with you and your family. That's a hard thing to go through. I had cancer a few years ago so I know some of what he has to go through - but I was an adult. It's hard for an adult to sit for 3 hours to get meds/transfusions, more less for a child. Take games, videos, books, etc. I know I'm not anywhere near you but if you need anything, I'll be glad to try to help out.
    Take care and God bless,
    Susan Pemble Hutchinson

    By Blogger Susan, at 8:26 AM  

  • Hey Jen and Chris,
    I can just imagine trying to keep Dante entertained for that long...I think Chris is right, make it into a game and he'll probably be fine with the whole hair thing. Thinking of you all every day. I have a ton of kids videos from when I was in the classroom- disney, etc.., give me a holler if you want to use them.

    Kip

    By Blogger Kip, at 3:24 PM  

  • Hi Chris, Jen and Dante,
    I'm Jaclyn, Barbara's daughter. Chris my mom and your mom are cousin. Jen, I got to meet you @ my sister's wedding a couple of years ago.
    Your mom gave us the website so I will check it every day for the updates.
    Please let me know if there is anything @ all I can do. My thoughts and prayers are with all of you every day.
    XOXO
    Jaclyn

    By Blogger Jaclyn, at 5:30 PM  

  • Hi Jen,
    Take your laptop with you.. not sure if you can get their wireless but we did when we were there, just depends on the location. We were in icu and we got the wireless signal if that helps.
    I am sure you could play some of his DVD's, maybe some stories/songs from itunes, looking at zoo web cams, lots of cute drawing programs and interactive sites.
    http://www.starfall.com/
    http://resources.kaboose.com/games/read1.html
    http://www.alphabet-soup.net/fun/slate.html
    http://www.dinosaurdesign.com/MrVegHead.htm
    http://www.sesameworkshop.org/sesamestreet/?scrollerId=stories
    http://crayola.com/kids/games/console.cfm?game=&ok=true

    hang in there! don't forget the earphones.... some of the websites get pretty noisy!

    By Blogger ann smith, at 7:52 PM  

  • Hey Jen and Chris,

    Glad to hear that things went smoothly with the transfusion, we thought about you guys all day. Carter and I are going to make you some more food this weekend, and bring it up. I will try and gather some DVDs and videos for the visit....maybe I'll hit Kip's house on the way!

    Love and lots of light-
    Caroline, Carter and Jackson

    By Blogger CBC Barefoot Books, at 8:16 PM  

  • Dear Chris, Jen, and Dante,
    You do not know me, but I read Kip's blog faithfully. She has also introduced us to your family via a private message board. I have included your family in my thoughts and prayers. I hope and pray things will start to look positive for dante. God bless..
    wendy blackman

    By Blogger Wendy, at 9:49 AM  

  • Just checking in on the family.....
    Much love, Tommy, Dori & Gina
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    xoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxoxox

    By Anonymous dori, at 4:37 PM  

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